Condition: A form of Cerebral Palsy called Spastic Diplegia.
Donated by us: A Trike costing: £1290.00
Lucas is a charming and chatty 3 year old who suffers from a form of Cerebral Palsy called Spastic Diplegia. Lucas’ condition means that he cannot stand unaided and can only walk with the use of a kaye walker or tripod. Although he can walk a few steps, his legs tire quickly, developing bad posture and pain.
When the family go out for a walk they have to push him in a buggy. He becomes very introverted and it seems to effect his confidence.
The trike we purchased for Lucas will encourage him to move his legs independently and has been adapted to stop his knees turning inwards. the exercise will help strengthen the weak muscles in his legs.
Lucas has Spastic Diplegia but there is an operation that can help!
Lucas was born in 2010. He did not seem to want to enter the world and was born after an emergency caesarian section. Lucas developed like any other child until he should have been sitting up, convinced that there was something unusual about his development, we pushed for consultations with health visitors, GP’s and paediatricians. 10 months later Lucas was diagnosed with Spastic Diplegia Cerebral Palsy.
This condition means his leg muscles are tense and rigid all of the time. This causes him pain and prevents his leg muscles from expanding or growing so he is unable to stand on his own. Through hours and hours of physiotherapy, daily stretches and this little boys perseverance , he is now walking with the use of pods. Although this development is amazing for his independence and building strength, he walks with great effort and tires very quickly. The tension will never go and as he grows his condition will become more evident, this will cause him pain and potentially deformities. Many children with spastic diplegia are in wheelchairs during their school years.
Lucas has a chance to be helped. Selective Dorsal Rythsotomy ( SDR) is an operation developed in the united states that will help relieve him of this tension, pain and the need for extensive orthopaedic surgery. SDR will help his balance and will be a step toward shim walking independently.
Lucas has been accepted for SDR in St louis hospital, Missouri by the doctor who pioneered this operation, he was also recently referred to Great Ormond Street ( gosh) in London as a private patient. This operation is not funded by the `NHS and neither is the extensive physiotherapy that will be needed as a follow up.
We need to raise about £50,000
A message from Lucas’ Mum – Sara:
Dear Patsy and team
Thank you so much for your time today. I had a lovely time getting to understand the great work of the Dorset Children’s Foundation does for the community. You made me feel so welcome and able to talk about my concerns and Lucas’ situation, it doesn’t come easy most of the time.
My husband Mike was so happy to hear the news and he sends his gratitude. Thank you so very much for getting into this boat with us! I’m sure it will be an interesting journey but definitely worthwhile.
Lucas’ new Trike arrives
The specialist trike we ordered from Theraplay arrived and we invited Lucas and his family to the shop. We disguised the trike as a huge box and Lucas was delighted when he opened it….There was not a dry eye in the house.
Lucas actually rode out the shop down the streets of Boscombe ( sorry pedestrians ) with a huge grin on his face.